She’s a huge part of my ‘WHY’ and she’s loved by all who get the honor to meet her. Izzie Mae is my oldest daughter and she lives with a rare neurogenetic condition called Angelman Syndrome.

AS is characterized by developmental delays, lack of speech, seizures and severe sleep issues, so life isn’t always easy for Izzie Mae. However, don’t think for a moment that she doesn’t live life to the fullest! Even better, she continuously exceeds expectations and thrives in so many ways.

When my wife and I received her diagnosis in September of 2018, we decided right away that it would not define her - that no limits would be placed on her life. We’re extremely blessed to have doctors, therapists, aides and teachers who subscribe to that belief along with us. Today, Izzie brightens any room she steps into and any life she encounters. We’re just honored to be along for the ride and watch her defy the odds.

Get this: Angelman Syndrome will be cured! No kidding - we’re living in very exciting times. Multiple human clinical trials involving gene therapy are ongoing and we have so much to be encouraged about. In fact, no other neurogenetic condition is closer to a cure than AS.

Onto the giving… Because it’s so rare, funding and efforts are largely dependent on families who are affected directly by AS, like ours. Ultimately, reaching the cure will be a marathon, but you better believe we’re here for it! We believe our Izzie Mae will do all things…100%.

Just by being involved with The Rx Grid as either a participating pharmacy or a patient of a participating pharmacy, you’re ultimately impacting the lives of thousands who are living with Angelman Syndrome. Portions of proceeds are given to the Foundation for Angelman Syndrome Therapeutics (FAST), an amazing organization where I volunteer as a member of their Advisory Council and as a content creator, in honor of Izzie Mae Bryant.

Good days are ahead!

From my family to yours, thank you very, very much.

Easton

Founder, The Rx Grid